Relay for Life 2012


Screening and testing is most important. Dont be shy to ask your Doctor.


http://www.getyourbuttseen.ca/

Saturday, September 13, 2014

change in plans because of good results



Good Day

Well here we go again - a change in plans. 

Went to visit the Dr. to get CT results.  Turns out they are much better then expected.  We arrived expecting some really not so good news and prepared for the worst.  Though we left with smiles and little bounce in our steps.

Chemo treatments will start again on Sept 23rd.  The same regiment I was just on.  The CT results showed there was shrinkage in the lungs, liver and lymph nodes.  So the rising CEA levels was not truly reflective of what was going on.  CEA levels can increase for months without growth in tumors.  Then growth happens. 

While chemo going through chemo treatments the investigation into Radiation will still be going forward.  So more to come on that.   The hope is that after a few treatments there is a break for Radiation then back to Chemo.  If it works this way then we have a great treatment plan for the next few months and longer.  Very happy and excited. 

My file is also being reviewed by Duke University again to see what if any options are available.

40 foot with rooftop sleeperThat is it for now.  Time for a night at TIFF and some star stalking at the closing gala.  Gonna be soe good times there.  Then off for a few days on a House Boat then a couple days of chillin at Uncle Colins cottage in Bancroft.   A great week of R&R with Teresa before we are back to the grind.  




Smile even if it only brightens your own day. 


Jt



Sunday, September 7, 2014

No so good results but still positive things ahead.



Good Day

Took a few days to get this post out there as Teresa and I had alot to discuss, ponder and cope with.  We are good, still standing strong and looking forward to moving forward with more treatments. 

Basically we are back to the unsure turmoil of disease and life. After my last CT, MRI and blood test results it was determined that the treatment was no longer being effective, once again.  The tests should minor progression and CEA levels were creeping up slightly.  With chemo being administered CEA levels should either be stable or decrease.   So with these results we had to stop the current regiment being administered.  There are now new referrals to the Radiation Therapist at Grand River and back to Princess Margaret Clinical Trials to see what options might be available.

Last week I was able to meet with a Radiation Therapist who is confident he can help with doing some pain control.  Radiation treatments for me is not for curing me of cancer.  It is just to far gone for that to happen.  (earlier detection might have made that possible)  He is requesting further CT`s and MRI`s to be performed on my back and specific pelvic areas to help him understand the effects the tumor is having on the region.  He may even request a bone scan to be sure of what is happening there as well.  Then by administering a radiation treatment he maybe able to relieve some pressure ad swelling to reduce  the pain I get in my back. 

Now we wait for test schedules.  and word from Princess Margarret for a trial option.

In the mean time I am also sending my case back to World Second Opinion for another review.  Now that the testing Duke University was suggesting is done and we have new CT`s for review - there maybe NEW options or suggestions from there. 

Once we have exercised those options and are not able to go any further, there is still Naturalpath treatments and alternative clinical treatments in Toronto.  There are a couple of clinics which specialize in treatments for those who have exhausted all conventional methods.  Then and only then will they take someone on as a patient.

There is also a new devise developed at Sunnybrook which is kinda cool. May have to inquire about this one at some point.
http://sunnybrook.ca/media/item.asp?i=988


So with all this not so good news we still have options and hope.  Though the DR`s constantly remind us there are no options to rid me of this unforgiving disease, we have hope for survival.  We are also reminded that this is something Teresa and I will be fighting for the rest of my life, I will be on treatment till the end.  These are all tough words for anyone to accept and understand.  Which I do with confidence.  Though my hopes and beliefs are alot more optimistic than what the DR`s advise.  I have already beaten all the odds they have advised us of.   These treatments I keep doing give me more and more time to keep fighting.  While I fight those doing research are making more and more progress in developing better treatments and procedures which one day could provide me a cure.  There has been a chance for me to be cured already once - I can get back to that stage once again though this time be sure the surgeon is able to resect and rid me of the main tumor.  I believe this will be possible.  This is what keeps me strong, this is what I pray for. That is where my hope lies. 

So when you pray and hope - this is what we need prayers for. 

Keep on smiling and sharing your smiles with others.

Jtee