Still in Limbo

Good Day

The day started with a grulling 3.5 hour drive to the hospital.  Yupp over 3 hours there - at least it was 2 hours home including a pit stop.  There was a bit of waiting and some short discussions but no real firm decisions.

The company conducting the trial has requested a new CT Scan to compare with the last one.  Which means they are considering keeping me on as part of the trial.  Just hope for the right results.

So off I go again tomorrow back to T.O.  to meet with the dermatologist about me rash.  Hopefully he can recommend something to help clear this up faster.  Or at least minimize the discomfort.  After that meeting back to Princess Margaret to discuss what is going on.  May know more tomorrow - may not.  If there is a change I shall do up a quick post.

If not - the picture says it all. 

 Keep on smilin  the world just might smile back. 

jt


 

Time for a verdict and Relay on Friday

Good Day

Something I can relate to and  it is funny that is the typical doctor positioning as well.

Tomorrow is the day - to Trial or not to Trial - that is the answer we seek.  Now you may be asking the question - but what do you mean there JT oh Smiley one?  What is going on with the trail?  Why would you not be trialing?
Well seems this "nasty rash" thing could get in the way of continuing with the clinical trail.  Seems the combination of the medications has caused a condition called Vasculitis.  Which in mild to mid cases is treatable and simple to cope with.  In extended extreme cases the condition be extremely painful and potentially damaging to additional organs causing major complications. So right now the risk is very limited as a very mild case.  Continuing though with a full dose treatment could be very very risky.  Tomorrow I find out if the organization trailing the medication will allow my treatments to be suspended a bit longer while I recover and then continue on a reduced dose.  Perhaps the Vasculitis will not reoccurr.  The other option is that continuing is to risky.  Myself - lets continue on a reduced dose.  The risks are understood and with recent results being so positive it is tough to not want to.  If the skin condition returns - by all means STOP and stop quickly.   So 12  - 16 more nail knawing hours of waiting to know what is happening..... uugghhh.  Fingers crossed.   Trial to continue on reduced dose to continue with great results.  Will send out a message Tomorrow or Thursday to let you know what is going on.

Relay for life is happening all over the country in the upcoming weeks.  This year we opted not to join in with a team.  That will be next year.  Smiley's Sidekicks will be kick'n butt.   
Not to say we are not joining in the celebration at all.  This Friday Cambridge Relay for Life will be

happening and I will be joining in the Survivor Lap.  Opening Ceremonies begin at 7pm which includes the survivor lap and luminaries will be lit around 10pm.  I invite everyone out to cheer on ALL survivors.  Look forward to seeing those who can make it. 


Cambridge Relay for Life
Preston High School   550 Rose St  Cambridge, ON N3H 2E6


that is it for now

Smile and Smile some more and if you feel like not smiling - try it anyways bet ya a giggle follows.

Jtee