About time - an update.

Good day

Yupp has been way too long since my last post with an update to what is going on.  Have had some writers block, some medical issues and just some plan old forgetfulness to post.   So going to try over the next couple weeks to get back on track with my blog.  Lets start with a couple of jokes that will make you go brrrrr.   

 

What do you get from sitting on the ice too long?       Polaroids! 

What's an ig?        A snow house without a loo!

Getting a job in the Arctic in the winter is great! Why?      When the days get short, you only have to work a 30 minute work week.



Living back in KW has been great and glad we did the move - sure find ways to keep busy.  Sometimes to busy which we have recognized and are working on slowing down abit - as I get run down easily.  I do miss the great city of Regina though still and all the wonderful people out there.  I look forward to going for a visit at some point.  Nothing in the plans yet.  (I will not bore you with wintery weather discussion - cold is cold and this year it is everywhere- yuck)

Medical update
Genetic Test:  Results are in and for the tests performed to qualify for trials - well I dont have the right stuff.  How frustrating - this cancer crap is the wrong stuff all around.  The mutation of the genes that I have are just not what is needed.  So there are no trials at this time for me.

December was a tough month as I fell ill with a blood infection and ended up spending 10 days in hospital.   Was a close call - could have gone real bad.  But all is good recovered and getting back on my feet alittle more each day.  Yeah it has taken this long to recoup.   There was an interruption in treatments and some issues with my new Hicman central line (IV access) as it appears that is what caused the infection.  Oh and let me tell ya if you have not spent a few days in hospital and shared a room with a unruly patient - you have not experienced ALL that a hospital stay has to offer.  When security has to restrain your roommate at 1am and again at 6am. There is plenty of excitement and entertainment to be had.  or as they may say - some hats to taken off and coats to be taken. 

What is next in this saga?
Well right now taking it easy and looking forward to the upcoming CT scan results.  The request will be sent in Tuesday and hopefully done in the next 2 weeks.

We also found a clinic in Maple ON which offers the Integrated Treatment we were looking at in BC. The big difference with it now just outside Toronto is the reduced cost and logistically making it happen.  Reduced cost as we dont have to relocate to another province for 3 months.  So as long as the Oncologist is onboard and the CT Scan shows proper results - this could actually happen sooner the later.  (previous post with info about Hypothermia Treatment)

Submitting my case to Duke again for review now that we have the genetic results - see if they have suggestions or options available South of the border which we may not.  

Though we are not getting the best of results - there are still some options.   

Will keep you posted to what is happening in the next couple of weeks as there is some exciting and scary stuff.  But all is positive in its own way. 

Thank you for reading and hanging in there with me.     

Cheers and keep smlin  - 2014 will be a bright and shiny year.

Jt